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December Newsletter

Dear friends,

Happy International Day of Persons with Disabilities! We are excited to be celebrating the day with lots of different activities! Join us today for a webinar to meet our research degree students and hear about their experiences 1-2 pm UK time: Spotlight on ICED’s Research Degree students. Or catch Morgon Banks as part of the event of the  (11:30-1:00 p.m. UK time).

There has been wonderful doctoral student success this month! Danae Rodriguez undertook a PhD on inclusion of people with disabilities in the health system in Chile, and passed pending minor corrections. Her studies included , , a large data analysis and a national health system assessment. Most excitingly – her work is already leading to the development of a new inclusive health policy in Chile! In addition, Florence Ndagire passed her Viva at Makerere University – making her the first of the PENDA-supported doctoral students with disabilities to finish. Her work focussed on Access to maternal, sexual and reproductive health services by persons with disabilities in the Central Region of Uganda. Well done Danae and Florence!

Tom has been busy contributing to the debate on the assisted dying bill in the UK. He argues in the press that  He also noted in the BBC news, once the bill had passed, that . He argues that better palliative care should be available too, yet existing evidence shows that .

We are excited to announce a PhD opportunity at ICED: This PhD project will develop and validate inclusive metrics to assess menstrual health in this population using participatory methods with individuals, carers, and experts in the UK. This research aims to influence policy and practice through systematic reviews, workshops, and surveys, driving meaningful change. Join us to conduct impactful, inclusive research and make a difference. Learn more about the opportunity and how to apply . The complete application must be submitted by 23:59 (GMT) on Wednesday 22 January 2025.

Last, but certainly not least, we are delighted to announce that the International Centre for Evidence in Disability (ICED) research group has received/secured a contract extension until December 2026 with additional funding to continue the PENDA programme (Programme for Evidence to Inform Disability Action).  The total value of the programme is now £10.5m and aims to create evidence to achieve long-term improved wellbeing and inclusion of people with disabilities in low and middle income countries, by developing knowledge, people and tools.

Read on for more ICED news!

With best wishes,

Hannah and Tom

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 is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. 

We have updated our website - so check it out to find more information about all our work!

In news this month….  We are delighted at the success of our International Conference on Disability and Development with PRASHO in India. There were around 100 delegates, presenting fantastic talks, and it was featured in the Indian press.

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Publications

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Papers this month from ICED!

PENDA Doctoral Student Queen Seketi has her first PhD paper out!

which used qualitative interviews across 6 provinces in Zambia, was published in the African Journal of disability. Well done Queen!

Islay Mactaggart, and a broad team from ICED and MRC Uganda published the paper  in the International Journal for Equity in Health. They undertook a scoping review, identified and adapted an audit tool, and pilot tested it across 5 facilities in Uganda. It built upon the  developed by Jill Hanass-Hancock and team.

Morgon Banks and Sara Rotenberg published  for the Special Olympics. Morgon presented it at their Global Centre Summit in Abu Dhabi which had the Ministers of Education and Sports present.

Tom Shakespeare and colleagues published  in the journal Sexual Health. Five key themes highlighted that improving sexual health services for adults aged 45years and over requires a multi-leveled approach: increase sexual health education, enhance patient and provider relationships, utilize community-led sexual health promotion efforts and delivery of reliable sexual health information, improve inclusive sexual health services, and break down sexual health taboos against adults aged 45+ years.

Hannah Kuper joined a team of Indian colleagues to publish  in BMJ Paediatrics Open. 

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Upcoming Seminars and Events by LSHTM

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ICED webinars:

• December 3, 1-2pm UK time, Zoom. Spotlight on ICED’s Research Degree students. Chaired by Tom Shakespeare, we will hear from three research degree students, Benafsha Yaqoobi, Luthfi Azizatunnisa and Emma Jolley, about what led them to their research topic and their research degree journey.
• December 11, 2:30-3:30 UK time. . In celebration of Disability History Month, the webinar will explore the evolution of disability, disability rights and workplace inclusivity with an expert panel, including ICED’s Mark Carew and Tom Shakespeare.
• December 12, 9:30 UK time. Disability in Nepal: The lived experience of physical disability and access to rehabilitation services in Dang District. Speaker: Winston Chin; Supervisors: Jane Wilbur, Tom Shakespeare & Mark Carew
• January 28, 10-11 a.m. UK time. Building Resilience: Co-Developing Disability-Inclusive Climate-Resilient WASH Principles in Bangladesh. Chair: Rosie Green; Panel members: Jane Wilbur, Sari Kovats (LSHTM), Shahpara Newaz (icddr,b), Sabiha Ahmed (WVB)

You can find all our previous seminars (including the audio recordings and slides) here.

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Other things of interest

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• Tom gave the Catholic Union Craigmyle Lecture on Tuesday November 19^th- "".
• ���ɲ�����’s&�Բ�����;�����ٱ����&�Բ�����; highlights the use of training of community health workers for improving care for people with disabilities, developed by LSHTM and the Missing Billion Initiative.
• Check out the new  with contributions from ICED’s Mark Carew, Sarah Polack, Hannah Kuper, and Morgon Banks!
• Also check out the , which included Hannah Kuper as a technical advisor!
• Congratulations to LSHTM which has been ranked second in the world and first in the UK for public health in the !

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Work Experience Programme at ICED

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We are currently not taking on new candidates however, you are welcome to complete an online application to register interest in interning with ICED. Please complete the .

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Have you seen this?

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? Everyone (30 second video)!

 

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2013

​�ċ�ċ�ċ�ċ�ċ�ċ​​​Disability History Month - Disability Identity and Employment Policy: Past and Present

Join us for an insightful event "Disability Identity and Employment Policy: Past and Present" where we’ll explore the evolution of the social model of disability, disability rights, and workplace inclusivity. This session will highlight employment policies and discuss the challenges that remain for disabled people. Through open discussions with an expert panel, gain a deeper understanding of how historical perspectives and disability identity inform current policies and challenges.

The event is remote and will include opportunities for Q&A with our panel of internal experts.

This event is open to all staff and students keen to learn more about Disability History.

• Professor Tom Shakespeare
• Dr Mark Carew
• Dr Gareth Milward (external guest speaker)
• Dr Helen Strongman (Event Chair)

When: Wednesday 11th December, 14:30 - 15:30

Where: remote only, via  

A recording will be shared on this page following the event.

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation. 

Phase 1 study reports, on the policy landscape, are available . Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen .

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

• Information on 
• Guidelines on 
• A range of free digital COVID-19 educational resources for children: ,
• Share your story and contribute to voices of people with disabilities during the COVID-19 outbreak: 
• ������ղ�’s&�Բ�����;free online course for anyone who is interested to learn about what we know about COVID-19, and how we should respond to the outbreak
• A course that
• Presentation from the International Centre for Evidence in Disability: making the response disability-inclusive
• Paper on what we can 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues

• Issue No. 21 (2020) Ear and hearing care in the midst of a pandemic
• Issue No. 20 (2019) Noise-induced hearing loss
• Issue No. 19 (2018) Hearing aid systems in low-resource settings
• Issue No. 18 (2017) Focus: Ear and Hearing Health in Schools
• Issue No. 17 (2016) Common ear conditions underdiagnosed at primary level
• Version Française No. 3 (2021) Soins de l’oreille et de l’audition en temps de pandémie
• Version en Español No. 2 (2021) Cuidado del oído y la audición en media de una pandemia
• Version française No. 2 (2016) Sensibiliser la communauté à la santé de l’oreille et de l’audition
• Version en Español No. 1 (2016) Abordando los problemas de oído
• Version française No. 1 (2015) Lutter contre les affections de l’oreill et de l’audition au niveau primaire
• Issue No. 16 (2015) Testing small children’s hearing with little or no equipment
• Issue No. 15 (2014) Early detection of hearing loss in newborn and preschool children
• Issue No. 14 (2014) Living with hearing impairment
• Issue No. 13 (2013) Increasing community awareness of ear and hearing health
• Issue No. 12 (2012) Addressing ear and hearing problems at primary level
• Issue No. 11 (2011) Projects in the Philippines
• Issue No.10 (2010) Less noisy cities Issue No. 9 (2009) Noise: an ubiquitous pollutant
• Issue No.8 (2008) Tinnitus: a common and manageable complaint
• Issue No.7 (2008) Screening for hearing impairment
• Issue No.6 (2007) Chronic suppurative otitis media: a disease still waiting for solutions
• Issue No.5 (2007) Rehabilitation of the deaf and hard of hearing
• Issue No.4 (2006) Deafness caused by ototoxicity in developing countries
• Issue No.3 (2006) Congenital infections and hearing impairment
• Issue No.2 (2005) Current practice for ear syringing
• Issue No.1 (2004) Congenital deafness in developing countries

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

•  edited by Hannah Kuper and Shaun Grech. July 2017
• , International Institute for Sustainable Development, June 2017
•  – Al Jazeera News Hour (live), 18 August 2015
•  – The Guardian, 18 August, 2015

SciDev.net columns

• February 2016: 
• January 2016: 
• December 2015: 
• November 2015: 
• October 2015: 
• September 2015: 
• August 2015: 
• July 2015: 
• June 2015: 
• May 2015: 
• April 2015: 
• March 2015: 
• February 2015: 
• January 2015: 
• December 2014:  November 2014:​�ċ�ċ�ċ�ċ�ċ�ċ

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: . We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

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Download content from each week

• Week 1: Disability and its importance to the global development agenda
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• Week 2: Health, wellbeing and disability
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• Week 3: Access to health care and rehabilitation services
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Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

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Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

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Video: Welcome to week 2